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Help me. My child is dying on my hands. Daniel is 11 years old, a first attack happened when he was 2. My child became blue, and we went to the hospital. We have been visiting all hospitals in Moscow for 9 years. But the cause of disease is still not found. The doctors suspect the lesions in brain in form of focal dysplasia, but they are not sure. As there is no such high-quality equipment in Russian Federation, like in Germany or Switzerland. All available magnetic resonance imaging (MRI) 3Ts in Russia are provided with programs, which do not allow reducing a cut-off value to 0.2 to examine possible lesion in the brain in details. The slices of our MRI 3Ts are at the best 1.0-4.0 m and higher, and when the step is reduced, it influences on image data quality. Therefore, radiologists often simply cannot see the spot, which requires a surgery. For sure, one can randomly cut-off a half of brain. I cannot even imagine a parent, who would willingly agree on operation, which is made randomly, after which a child may never recover, become paralyzed, or even die. I applied to plenty of Charity funds, but all they refused to help on the grounds that they are authorized to raise money only for treatment, and cannot raise money outside of Russian Federation due to some restrictions or a law.  All this looks like terrible vicious circle. I am a mother of seriously ill child, who endures everyday injections of narcotic drug «Relanium», in order to prolong his life and relieve a series of convulsions. This drug is already addictive, therefore introduced dose is high, and not every adult can withstand it. The doctors of Federal State Budgetary Institution “Russian Children`s Clinical Hospital” (FSBI RCCH) of the Ministry of Russia issued a conclusion of medical commission dated 27/12/2017, which states that my child underwent all examinations on the territory of Russian Federation, and that it is necessary to have examination at Neurosurgery Clinic of the University of Munich, Campus Grosshadern, in Germany. According to administrative regulations, I have provided all specified documents to the Ministry of Health, but received unjustified refusal. I filed a lawsuit to the court on the Ministry of Health for unlawful refusal to provide public service for seriously ill and disabled child.  The Ministry of Health sent 5 representatives, who tried to get by and turned themselves in every way, making up various excuses. At one of the meeting, a man of immense size, a lawyer from the Ministry of Health with surname Andre, told that giving the funds for saving of my seriously ill son is a WASTE of money. I have met the Commissioner for Protection of Children Rights under the President of Russian Federation. But they made a decision for court discretion. Later, after they sorted it out, they started to help us.  They wrote letters to the Ministry of Health, asking for help. But seems to me, they are not respected authority for the Ministry of Health. A judge of Tver District Court is not a doctor, and she did not want to decide against the Ministry. Or maybe she has received instructions from above? District court refused us, thereby untying the hands of officials, the murderers. The Ministry of Health forced us to undergo more unnecessary examinations, because we already got results better than those, reappointed by the Ministry of Health. Yet again, instead of providing help, my child received a radiation dose due to anesthesia. That led to another hospitalization and really brave and understanding doctors, proceeding under risk of dismissal, could not help the child, issued a referral for Germany again, for examination and operation this time. The child almost died in the hospital, because there were no means to treat him.  For all these years, the child endured all kinds of therapy available in Russian medical practice. Moreover, the officials of the Ministry of Health claimed that not all treatment methods were used in Russia, they claimed that they could recommend us only for operation, but not to examination which could determine the cause of disease. The vicious circle, again. I have repeatedly sent petitions to the President’s Administration, and in return, they have sent my petition to the Ministry of Health. And again, this circle repeats with no way out, as it seemed to me.  I turned to the Office of the General Prosecutor to claim for protection of rights of my child, but they have sent me a contentless number of letters, without any substaintial clue to solve such an important and vital issue.

I raise my child alone and have to work a lot. I forgot when I got enough sleep. These attacks and loss of consciousness led me to complete despair and hopelessness.

I also turned to the deputies, they said that they sympathized, but could not help. I turned to the President with video appeal on 15/06/2017, but my question remained unanswered. I ask to help me to raise funds for examination, hospitalization, and operation at the Neurosurgery Clinic of the University of Munich, Grossgadern, in Germany. (Neurosurgery of Brain and Spine).

I work and raise alone my disabled child, it is impossible for me to collect 78 000 (seventy eight thousand) euro, the sum which is necessary for recovery of my child. The child is in critical state.

Daniel is seriously ill, every day he suffocates from attacks, and from brain hypoxia due to the lack of oxygen, and he stops breathing.  I do not know which attack will be the last one. He is 11 years old, he cannot talk, his feet failed in 2019, and doctors do not have any idea, what is going on. Every day emergency is on duty at our place, but they cannot take us to any hospital, because no one can help. Our life is like hell.

I am grateful to Vera Brezhneva and M-band group, who tried to raise funds in a form of an auction in Youtube program “One and half Korean”, but they could raise only 160 thousand rubles.   And of course, they were very upset, because amount appeared not to be sufficient. The link to this program is on top of the page. I have asked journalists and TV producers, but everyone and everywhere refused us under different pretexts. 

Nevertheless, I found a brave journalist, I turned to Aleksander Skrylnikov, and he wrote an article about Daniel. Link to the article is on top of the page.  Diagnosis: “Cryptogenic multifocal epilepsy, pharmacoresistant phase.  Psychomotor speech retardation, with autistic behavior disorder. Ataxic syndrome”.

The child is alive, by miracle, he takes huge doses of very strong and dangerous medication,  which is not effective anymore.  I receive multiple runarounds from the Ministry of Health, a plenty of runarounds from Charity funds about my disabled child.  They are killing my child being that indifferent.

We won a trial in spring of 2019. But it was too early to rejoice. The City Court ordered the Ministry of Health to refer us to clinic in Germany, for having an examination and brain operation. If the operation is not done in time, the child may die. It is not possible to conduct such examination in Russia, because there is no such equipment here, such equipment is available only in Germany, at the University State Clinic, and in Switzerland, at the State Clinic Kinderspital Zürich Universitäts-Kinderkliniken. We delivered a Writ from 02/04/2019, Case No. 2-1796/2018 and Appeal determination, to the Ministry of Health.  Officials from the Ministry of Health pretended to make an agreement with German clinic, but in reality it turned out that they provided an AGREEMENT IN THEIR OWN INTERPRETATION, WHICH APPEARED TO BE INDENTURE FOR GERMAN CLINICS, AND THE MINISTRY OF HEALTH JUST DID NOT WANT TO NEGOTIATE. Officials from the Ministry of Health advised me to go to Germany by myself and to negotiate at the place. But contracting department in Germany was shocked with this contract provided government, and refused to sign it. I have read the contract, it is stipulated that when Russian party signs the contract, the customs and law of other party of contract, are only valid. As a result: The Ministry of Health viciously avoided helping my child, and did not execute the court decision from 02/04/2019 by purpose.

Sending a child for examination and treatment where German doctors were already waiting for us failed. To solve this terrible situation, I filed a petition to the court to change the court's decision in favor of the child, to charge money from the Ministry of Health for examination and operation due to the fact that the Ministry of Health just artificially creates the illusion of work, it hinders in every possible way and does not fulfill either the administrative regulations or the court decision. They offer to put the child back in the clinic, which now can not provide a medical consultation and an ADEQUATE SOLUTION, AS IT IS FULLY SUBORDINATED TO SKVORTSOVA V.I., THE MINISTER OF HEALTH, who intimidated doctors with dismissals.

Another trial took place in the Moscow City Court on November 14, 2019, where officials of the Ministry of Health were brazening it out in every possible way, providing ridiculous reasons and proposing to go to other clinics that do not have the necessary medical equipment. They removed the clinic in Munich where the child receive adequte helpfrom the medical commission list. They have falsified documents. They were lying and dodging. I think they somehow influenced the court, because the court denied the request to charge money for treatment at the clinic.

ACTUALLY, BY THIS DECISION, THEY GAVE MY CHILD TO THE MURDERERS FROM THE MINISTRY OF HEALTH TO BE TORN APART. THE MINISTRY OF HEALTH DELIBERATELY DELAYED THE TIME TO KILL MY CHILD AND THEY WANT TO CONTINUE TO WASTE TIME, THUS EXPOSING MY CHILD'S LIFE TO THE RISK OF DEATH.

At the court, they said that we had to go through the medical commission again so that they could include five new clinics in the list. I went to those clinics and called them. In fact, the clinics recommended by the Ministry of Health do not even have the necessary equipment. One of the clinics specializes in childbirth. The Ministry of Health officials intentionally harm and are not interested in providing assistance to the child. Accordingly, I see no point in going through another medical commission. During all this trial period the child's condition only worsened. There is no time to waste. My child needs to be urgently hospitalized to the German Clinic in Munich.
The Court trials have been going on for two long years.
During the litigation with the Ministry of Health my child’s legs were paralyzed. And doctors had no idea what the reason was.

Every day the child experiences unbearable pain. I ask you to support and help Galak Daniel Leonidovich born on 02.05.2008, a seriously ill child with disabilities. Help me for God's sake. I don't trust the Ministry of Health. I don't trust Law anymore. I do not believe the TV where Skvortsova V.I. the Minister of Health says how many children she has helped, because all this is insolent lies. There is no chilf with illness who has received help from the Ministry of Health. My child was denied medical care.

I have been suing the Ministry of Health for two years to save my child's life. What do we pay our taxes for? Where do they go for? Why does not the President punishing those who are guilty, due to the fact that the constitutional rights of my child are violated?

I am the only one fighting with the bureaucratic infernal system, fighting for justice and the life of a little kid who can still be saved. It is hard to believe that this is happening to a helpless little disabled child in our peacetime. My grandfathers and great-grandfathers fought and shed blood during the war for a brighter future, and peace, and health for generations. So, was it for nothing? I hope for your help and assistance.

I ASK EVERYONE WHO SEES MY APPEAL TO SHARE IT. THE CHILD'S LEGS ARE BEING PARALYZED AND HE LOSES CONSCIOUSNESS, NOT BEING ABLE TO SPEAK DUE TO SERIES OF SEIZURES. THE CHILD'S LIFE SWINGS IN THE BALANCE. All documents and examinations, including invoices from 2 clinics, are available on request. Fundraising is open:

For transfers within Russia:

- saving bank card No. 4279 3800 2894 7440 (or phone message 89671930920)

- Raiffeisenbank card No. 4476 2461 3101 7556 Galak Anna Yurievna (Daniel’s mother)

Details of the currency account:

Account number:

40817 840 3 0100 1099644

Beneficiary:

ANNA GALAK, 111558, Moscow, Federativnyi av., 54, appt. 17

Beneficiary's bank:

AO Raiffeisenbank

SWIFT: RZBMRUMM

Address: 17/1 Troitskaya, Moscow, 129090, Russia

Intermediary bank:

The Bank of New York Mellon

SWIFT: IRVTUS3N

ABA: 021000018

СHIPS Routing No: 0001

Address: One Wall Street, New York, NY

10286, United States of America

Correspondent account in the Intermediary Bank
8901303402
Purpose of payment: Gratuitous charitable donation.
Galak Anna Yurievna,
E-mail:7264474@mail.ru
Phones: 89671930920, 89684473167


​ 

                                                               Петиция / Petition :                                                                    

20.11.2019 г   

To: the U.S. President Donald John Trump, the U.S. First Lady Melanie Trump, American artist Leonard Wilhelm DiCaprio, U.N. Goodwill Ambassador, the U.S. artist Angelina Jolie, artist and U.N. Goodwill Ambassador Orlando Bloom, artist and filmmaker Robert Anthony De Niro, and actor Johnny Depp, American singer Lady Gaga - Stephanie Joanne Angelina Germanotta, the members of the Rothschild family, the Queen of Great Britain Elizabeth II (Elizabeth Alexandra Maria Windsor), the President of Germany Frank-Walter Steinmeier, the President of the Arab Emirates Khalifa bin Zayed Al Nahyan, the President of France Emmanuel Jean-Michel Macron, the King Philip VI of Spain, the President of Italy Sergio Mattarella and the President of Switzerland Ueli Maurer, the United Nations organization, the International Disability Organization, the European Court of Human Rights, the President of the Russian Federation Vladimir Putin, the Prosecutor General of the Russian Federation Yury Yakovlevich Chaika, Ekaterina Malevskaya, the Head of the Department for Supervision over the Implementation of the Laws on Minors (Department 21), Vladimir Olegovich Potanin, Public and Political Figures. Kuznetsova Anna Yuryevna to the Commissioner for Children's Rights under the President of the Russian Federation. To the Charity funds.
 

From: Anna Galak, Russian Federation Acting in the interest of her seriously ill and disabled child Galak Daniel Leonidovich born on Mat 02 2008

 

Petition

 

Anna Galak, a citizen of the Russian Federation, is addressing you with a request to help my seriously ill child with disabilities, Galak Daniel Leonidovich, born on May 2nd 2008. Help us to deal with the Ministry of Health of the Russian Federation. The constitutional rights of the child have been violated, and the Administrative Regulations have not been properly implemented. All terms have been extended. Instead of receiving urgent assistance by the Ministry of Health, the child's health is being harmed and his life is under threat. I had to go through the courts trials to save the child's life. I have asked for help in providing the state service for examination and treatment outside the territory of the Russian Federation at the expense of budgetary allocations of the federal budget. Or to receive help in any other way possible to send the child for examination and treatment to Germany or Switzerland, to Großhadern Klinik (Munich, Germany). There is an invoice from Großhadern Klinik, the amount for examinations and treatment is 78000 (seventy-eight thousand euros). In Switzerland, doctors at the Kinderspital Zürich Universitäts-Kinderkliniken National Clinic have issued an estimated risk-based invoice for 256,710 thousand Swiss francs on August 15 2019 (Medip Swiss Medical Partners) for multiple surgeries. Daniel’s diagnosis: «Cryptogenic focal epilepsy, organic personality disorders and epilepsy related behavior. Atactic syndrome. Pharmacoresistance. (inefficacy of medications)». To relieve a series of seizures the Relanium drug is administered daily. This drug has caused addiction and gives short-term effect. But this is the only way to maintain his life. A lot of drugs are administered without results as well. And there are no other medications to help the child, because THE CAUSE OF THE DISEASE OF THE CHILD HAS NOT BEEN DETERMINED. Since 2010, the child has been repeatedly examined and hospitalized in specialized medical institutions, but the cause of the disease has not yet been established. According to the minutes of the meeting of the medical commission, on December 27 2017 No. 244 of the Federal State Budget Institution “Russian Children's Clinical Hospital” of the Ministry of Health of the Russian Federation, based on the results on the documents, they came to conclusion to send the child for examination and treatment outside the Russian Federation on the expediency, since all the methods allowed on the territory of the Russian Federation to diagnose and treat the child according to the existing disease symptoms had already been applied. The recommended centre for diagnosis and treatment of this pathology is Großhadern Klinik (Munich, Germany).
The child is in critical condition. The Ministry of Health of the Russian Federation does not solve the child's situation positively, it does everything possible to avoid solution. There was a court proceeding and there will be more court proceedings in the future. But even now it is clear that the Ministry of Health is not going to help the child.

 

At Tver regional court, a representative of the Ministry of Health HAD SAID THAT GIVING MONEY TO SAVE THE LIFE OF A SERIOUSLY ILL DISABLED CHILD IS A WASTE OF FUNDS.

I have asked the Attorney General's Office to help me with this matter. The Attorney General's Office gave me an obscure answer, saying that they had no right to interfere. After the trial, the child’s condition became even worse. The child was admitted to the hospital. The doctors were in dismay and did not understand why the Ministry of Health had refused to save the child's life. The next medical commission was convened. I was given the Act of the medical conclusion of the medical committee. Only an extract, dated on October 08 2018, it is written clearly that in view of the dramatic course of the main disease, it is advisable to conduct the seriously ill child for examination and treatment outside the Russian Federation, as well as all the methods of diagnosis and treatment administered to him in accordance with the existing disease allowed for use in the territory of the Russian Federation. According to the form of the Administrative Regulations, I have submitted to the Ministry of Health all the documents, including the application on October 12 2018.

ATTENTION!!! I HAVE NOT RECEIVED NO ANSWER! NOT A SINGLE WORD. JUST A QUESTION : WHO WILL BE RESPONSIBLE FOR THE ACTIONS AND INACTIONS OF THE OFFICIALS FROM THE MINISTRY OF HEALTH? WHO WILL PUT CONTROL OVER THE MINISTER OF HEALTH IN ANY WAY AND REMIND HER DIRECT OBLIGATIONS TO SAVE THE LIVES OF SERIOUSLY ILL PATIENTS?

I HAVE SUBMITTED THIS CASE TO THE CITY COURT FOR CONSIDERATION AS THE RIGHTS OF THE CHILD ARE INFRINGED BY ACTION AND INACTION OF THE MINISTRY OF HEALTH WHAT CREATES A REAL THREAT TO THE LIFE OF THE DISABLED CHILD.

In spring 2019 I won the trial. But it was too early to rejoice. The City Court ordered the Ministry of Health to send the child to the Clinic in Germany for examination and brain surgery. If the surgery is not performed in time, the child may die. The above examination is impossible to be performed in Russia, because there is no such equipment, but in Germany at the University Hospital and the Kinderspital Zürich Universitäts-Kinderkliniken in Switzerland it can be performed. I took the Execution writ of the Ministry of Health issued on April 02 2019, Case No. 2-1796/2018 and the Appellation decision. In the Ministry of Health, officials pretended to negotiate with the German clinic, in fact, as it turned out, they submitted a one-sided contract in their own interpretation, which turned out to be inapplicable for the German clinic, and the Ministry of Health just did not want to negotiate.

 

The officials from the Ministry of Health advised us to go to Germany and make an agreement there. But the contract department in Germany was shocked by the provided state contract and refused to sign it. I have read the contract, and it says that when the Russian party signs the contract, the law of the other party of the contract would be applied. In conclusion: The Ministry of Health has been maliciously evading assistance for my child, deliberately failing to comply with the court's decision of April 02 2019. Sending the child for examination and treatment where German doctors were already waiting for us has failed. To solve this terrible situation, I have filed a petition to the court to change the court's ruling in favor of the child, to raise money from the Ministry of Health for examination and operation due to the fact that the Ministry of Health only creates the illusion of business, it hinders in every possible way and does not fulfill either the administrative regulations or the court decision. They offer to put the child back in the clinic, which now cannot provide a medical consultation and an ADEQUATE SOLUTION, AS IT IS FULLY SUBORDINATED TO  THE MINISTER OF HEALTH SKVORTSOVA V.I.,, who intimidated doctors with dismissals.

Another trial took place in the Moscow City Court on 14.11.2019, where officials of the Ministry of Health in every possible way were brazening it out, providing ridiculous reasons and imposing other clinics that do not have the necessary medical equipment. They removed from the medical commission list the clinic in Munich where the child could be helped. They falsified documents. They were lying and dodging. I think they somehow influenced the court. Because the court denied the request to charge money for treatment at the clinic.

ACTUALLY, BY THIS DECISION, THEY GAVE THE CHILD TO BE TORN APART BY THE MURDERERS FROM THE MINISTRY OF HEALTH.
THE MINISTRY OF HEALTH DELIBERATELY DELAYED THE TIME TO KILL DANIEL AND THEY WANT TO CONTINUE TO WASTE TIME thereby exposing the child's life to danger. In court, they told us that we had to go through the medical commission again so that they could include five new clinics in the list. I called up and went to these clinics. In fact, the clinics provided by the Ministry of Health do not even have the necessary equipment. One of the clinics specializes in childbirth. The Ministry of Health officials intentionally harm and are not concerned about providing assistance to the child. Accordingly, I see no point in going through another medical commission. As all this time both, mother and child, were at the court and the child's condition only worsened during this time. There is no time to waste. The child needs to be urgently hospitalized at the German Clinic in Munich. Courts have been going on for two long years.

During the litigation with the Ministry of Health the legs of the child were paralyzed. And doctors have no idea what the reason is. Every day the child experiences unbearable pain. I ask you to support and assist Galak Daniel Leonidovich born on 02.05.2008, a seriously ill child with disabilities. First of all, bureaucratic actions of the Ministry of Health affected the child, who needs immediate qualified medical care. She has also applied to all the Charity foundations, but they do not raise funds abroad for examination and diagnostics. The funds raising is carried out only for surgeries. Maybe someone could advise what to do in this situation, when doctors are unable to help because there are no MRI tomographic scanners in 3TS with a 0.2 section in the Russian Federation, necessary to see in detail the possible lesions in brain and remove them surgically without affecting large areas of the brain. And according to the results of the medical commission, the Ministry of Health refuses to provide funds to save the child's life, thus violating administrative regulations and constitutional rights of the child, depriving him of the right for life. Moreover, it tries to impose private clinics, where the child is also unable to be helped. The child is literally abandoned on Anna’s hands. She has to ask the world community for help. Help me!

Account for fundraising:

For transfers within Russia:

- saving bank card No. 4279 3800 2894 7440 (or phone message 89671930920)

- Raiffeisenbank card No. 4476 2461 3101 7556 Galak Anna Yurievna (Daniel’s mother)

Details of the currency account:

Account number:

40817 840 3 0100 1099644

Beneficiary:

ANNA GALAK, 111558, Moscow, Federativnyy pr-kt, house 54, # 17

Beneficiary's bank:

AO Raiffeisenbank

SWIFT: RZBMRUMM

Address: 17/1 Troitskaya, Moscow, 129090, Russia

Intermediary bank:

The Bank of New York Mellon

SWIFT: IRVTUS3N

ABA: 021000018

СHIPS Routing No: 0001

Address: One Wall Street, New York, NY

10286, United States of America

Correspondent account in the Intermediary Bank

8901303402
Purpose of payment: Gratuitous charitable donation.

 

With hope, Anna Galak. I would like to ask you to send your answer to my actual address of residence: 111394, Moscow, Perovskaya ulitsa, 73/43, kv. 41 Galak Anna Yurievna or to the E-mail address: 7264474@mail.ru

tel. 8(915)113-1000, 8(903)726-4474

The following documents are available:

1. Act of the meeting of the Medical Commission dated on December 27,  2017 No. 244

2. Medical report (FGBU RDKB of the Ministry of Health of Russia)

3. The medical commission decision dated on December 27, 2017 (FGBU RDKB of the Ministry of Health of Russia)

4. Refusal of the Ministry of Health

5. Act of the Medical Commission No. 187 dated on October 08, 2018, Medical report of the RDKB FGBOU RNIMU of the Ministry of Health of the Russian Federation dated on May 22 2018.

6. Two indicative invoices from the German State Clinic Großhadern Klinik (Munich, Germany) for the examination and treatment dated on January 16, 2019 and the invoice from the State Clinic Kinderspital Zürich Universitäts-Kinderkliniken of August 15, 2019 (Medip swiss medical partners)

7. Execution writ dated on April 02, 2019 Case No. 2-1796/2018 and the Appellation decision.

 

We respectfully ask for your help to save the child
We the undersigned: (link to the petition at the top of the page)

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